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Mon Oct 16, 2006 5:02 pm
My daughter is 14 and has been diagnosed with
severe protrusio
acetabuli in both hips. In December 05 she was
diagnosed and did not
have any symptoms. By May she was limping and
this summer she went
from walking with a cane to being in a
wheelchair. She now can walk
only around the house with the aid of forearm
crutches. We are
awaiting surgery dates for either BHR or THR.
Have any of the people
with this condition experienced such rapid
deterioration? Her case is
very complicated by the fact that she is so
young.
My daughter's
condition is primary.
We had no idea of any problem as she has been a
very athletic child.
In December she was playing in a volleyball game
and her hip hurt so
on a whim I took her for an x-ray which showed
this condition. She
never had any more symptoms until May. We had to
find a new
specialist as the first pediatric ortho said
nothing could be done
for her until she finished growing. However her
deterioration has
been so rapid that our new doctor (who is
experienced in Birmingham
hip resurfacing) says that it can not wait. We
saw him in mid
September and he investigated doing a
periacetabular osteotomy and
femoral rotation but her cartilage is too far
gone. We meet with
him and some other specialists this week to
decide the type of
procedure to be done. There is concern with the
BHR with chromium
and cobalt ions due to her young age. I am happy
to hear you have
had such good results with range of motion and I
hope that we can
have surgery which gives my daughter good
results. I am also happy
to find some others with this condition. I felt
like we must be the
only ones in the world with this.
Just a quick note to say that our 14 year
old daughter was given
a lf BHR yesterday by Dr. James Powell in
Calgary, Alberta. She has
severe Protrusio Acetabuli and it is bilateral.
Our Dr. plans to do
the right hip in about 2 weeks or so as soon as
she is recovered and
feels up to it. She has non weight bearing
restriction for 6-8 weeks
as she was in a wheelchair prior to surgery for
about 3 months and her
bones are very soft. The Dr. is very concerned
about fracturing as
she is also very tiny. We are thrilled that he
was able to do a
resurfacing and feel very thankful to have such
a skilled surgeon as
her case is a very difficult one. She is very
tired today but happy
that the journey to the other side has begun.
Thank you to everyone
for your support.
Lynn
Hi! Our daughter had her second hip resurfaced
today in Calgary,
Alberta by Dr. Jim Powell. Her first hip was
done two weeks ago and
is progressing nicely. We are thrilled and
thankful to have such a
skilled surgeon in Calgary. Hers is a difficult
case and his care has
been exemplary. Our daughter has severe protrusio acetabuli and has
been in a wheelchair since August so her bones
are very soft. She
will be non weight bearing for 6 weeks to
prevent femoral neck
fracture and facilitate healing. She has a long
road to recovery
ahead of her but we are very positive that she
will have a good
outcome. If we can ever be of any help to other
people,
particularily those who are young or have
protrusio please contact
us. We will post again with news of our
daughter's recovery. Sincerely Lynn Rt and Lt BHR Jim Powell- Calgary,Alberta,Canada
Fri Jan 19, 2007 3:16 pm
We just returned from our daughter's
checkup. She is now 8 weeks
post op on the left hip and 6 weeks on the right
hip. After surgery
she was totally non weight bearing so she has
been in a wheelchair.
For those of you new to our case my daughter has
severe protrusio
acetabuli and was in a wheelchair for three
months prior to her
surgery. She had severe contractures and no
range of motion and is
considered a very difficult case. Her x-rays
look fine and her bone
grafts have healed nicely! She is now able to
begin walking with the
use of forearm crutches. Her range of motion is
improving and
hopefully it will continue to as she gains
strength. She will continue
with physiotherapy both in water and in the
hospital. Best of all she
is pain free and moving forward slowly but
steadily. ..and our Doctor
has been wonderful. If we can help
anyone-especially young people
please contact us.
Lf BHR and Rt BHR - Dr. Jim Powell, Calgary, AB
February 2007
Kaibree
is now about 4 1/2 months post op and she is
progressing wonderfully. She can now walk
without crutches or cane and to see her walking
you would never know she has had bilateral hip
resurfacing. When we watch her today it is hard
to believe that only three months ago she was
still in a wheelchair. Kaibree's progress has
been steady. She is becoming more like the
active teenager she was before this condition
developed. We still attend physiotherapy as she
has had some discomfort caused by her iliopsoas
tendon so the therapist is targeting that area
as well as continuing to work on her external
rotation. She swims three times a week with a
swimming club and she is starting to take part
in normal phys-ed classes at school. She is able
to walk a good distance (2-3 kilometers) and is
riding her bike again! This resurfacing
procedure and the care of a great doctor has
give our daughter a chance to resume the active
life she knew. We hope that her progress will
continue! Success in her case will certainly
help other young people receive treatment
through resurfacing.
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